New partnership on Helpline for Lewy body dementia

Lewy Body Dementia UKThe Lewy Body Society and Dementia UK are today launching a new partnership to offer expert advice and information on Lewy body dementia, through the Admiral Nurse Dementia Helpline.

The Admiral Nurse Dementia Helpline is run by Dementia UK and is for anyone with a question or concern about dementia. It is staffed seven days a week by specialist dementia nurses, Admiral Nurses, and is free to call.

Lewy body dementia is the second most common form of age-related neurodegenerative dementia. It is thought that around 130,000 people in the UK are living with this common, but little known disease.

From today, when anyone affected by Lewy body dementia, whether they are a person living with the disease or a carer for a relative or friend, calls the Lewy Body Society, they will be directed to the Admiral Nurse Dementia Helpline for advice and support.

This might include information about treatment options; understanding the differences between Lewy body dementia and other forms of dementia, such as Alzheimer’s or vascular dementia; or strategies for looking after yourself as a carer of someone with dementia.

Jacqueline Cannon, Chief Executive of the Lewy Body Society, said:

“It is essential that people living with Lewy body dementia and their carers have access to expert advice and information, to help them understand the disease and how to live with it. Rather than duplicating and providing this service ourselves, we are delighted to partner with Dementia UK and signpost people affected by Lewy body dementia to the excellent Admiral Nurse Dementia Helpline.

“This allows us to focus our efforts on our core objectives of funding research into the diagnosis and treatment of Lewy body dementia, and raising awareness of the disease.”

Paul Edwards, Director of Clinical Services at Dementia UK, said:

“This is a valuable partnership in which the Lewy Body Society is able to concentrate its efforts on research into this particular type of dementia, while Dementia UK’s Admiral Nurses can provide the compassionate and knowledgeable support and advice that families affected by dementia need.”


Dementia UK is the national charity providing support to families facing dementia through its Admiral Nurse service.

The Admiral Nurse Dementia Helpline is available on 0800 888 6678 and is open Monday to Friday 9am-9pm and weekends 9am-5pm.

The Lewy Body Society is the only charity in Europe exclusively concerned with Lewy body dementia. The charity’s mission is to raise awareness of LBD among the general public and educate those in the medical profession and decision making positions about all aspects of the disease. It also funds research into the disease and is a member of the Association of Medical Research Charities.

For further information contact the Lewy Body Society Press Office on or call Kate Groucutt on 07855 383445.

© National Dementia Action Alliance 2020. All rights reserved

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