National Dementia Action Alliance Newsletter November 2018

November National DAA Newsletter Smaller

Our November update includes our annual conference, a new podcast and our budget response

For the November edition of the National Dementia Action Alliance newsletter we’re looking ahead to exciting items in 2019 such as our annual conference and annual report. We’ve also got a new podcast, our takeaways from the UK Dementia Congress and our response to the Budget 2018. There are also updates from NDAA members Life Story Network CIC, Tide, Innovations in Dementia, Hallmark Care Homes, Arts4Dementia, Alzheimer’s Society, CQC and NICE.

NDAA annual conference 2019 and our report from UK Dementia Congress

Annual Conference Image1Registration is open for the NDAA annual conference 2019 which will take place on Wednesday 6 February. We’re currently working on the agenda and will release further details soon but you can reserve your place and save the date now.

Register your place for the NDAA annual conference now

Earlier this month we attended the UK Dementia Congress 2018 where we hosted our own stream on dementia care in acute hospitals. To see our report on the event click below.

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Life Story Network CiC & TIDE Receive Major Lottery Grant

Tide and Life Story NetworkLife Story Network CiC has been awarded a major grant from the Big Lottery Fund to support carers, and former carers, of people living with dementia across the UK, through their pioneering programme ‘tide – together in dementia everyday’. The organisation has been awarded a £1.2million grant from the Big Lottery Fund, which uses money raised by National Lottery players to help communities achieve their ambitions.

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5 minutes with April Dobson from Hallmark Care Homes

April Dobson Photo 140x177We spoke to April Dobson who is the Head of Dementia at NDAA member Hallmark Care Homes on the work they are carrying out, what that is focussed on and our own From Seldom Heard to Seen and Heard campaign. Hallmark Care Homes, based in Billericay, Essex have 18 residential, nursing and dementia homes across England and South Wales.

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The NDAA responds to the budget 2018

Treasury Image 140x70Prior to the Budget 2018 Theresa May had announced that the age of austerity was over and a fair bit of the information that would be released was made available to the press prior to Phillip Hammond’s speech on Monday 29 October. Over the weekend The Times and The Guardian had reported on a commitment to funding of up to £1 billion for social care. In the end the actual figure was £650 million of funding as well as the £240 million additional funding for social care that was announced in September. Here the NDAA provides a response to the Budget 2018.

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NDAA podcast with Vicki Leah formerly of UCLH and Jo James from Imperial College London

Vicki and Jo PodcastVicki Leah was formally Consultant Nurse of Older People and is currently working on a project with the Royal College of Nursing raising awareness around delirium. Vicki was previously the chair of our Dementia Friendly Hospitals Task Force and that position is now being taken up by Jo James who is Lead Nurse Dementia at Imperial College London Healthcare NHS Trust. We spoke to Vicki and Jo together after our latest task force meeting about the work of the task force and the impact they have seen the charter have. We also discussed the volunteering element of the charter and their views on the future of dementia care in hospitals.

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NDAA Action Plans and Annual Report submissions required by 30 November 2018

Annual Report ImageWe’re currently gathering submissions for our annual report for 2019 for which all members need to submit a new action plan for the year ahead. Members also have the chance to submit achievements from the past year and a selection of those will be featured in the report. All have received emails on how to submit your Action Plan or Annual Report submission. If you haven’t received that please contact us at

Click here to complete your Action Plan and Annual Report submission 

Click here if you’ve already completed your Action Plan to provide your Annual Report submission

Or to find out more about what your organisation has submitted email us by clicking below.

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Updated Action Plan: Innovations in Dementia CIC

Innovations in Dementia CIC have a selection of updated commitments. These include:

Commitment 1 relates to the Dementia Statement around Independence/Interdependence/Dependence which states:

We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it.

Innovations in Dementia CIC state:

Through our work with the DEEP network we will continue to find ways for people with dementia to have an impact on decisions within their local communities.

We will do this by bringing opportunities for influence to the attention of local groups and supporting them in taking the necessary actions.

See this as well as other updated commitments from Innovations in Dementia CIC by clicking below.

Find out more 

Other NDAA news – click for details

NDAA Steering group member Jean Tottie wins the Lifetime Achievement Award at the National Dementia Care Awards 2018

Arts4Dementia provide online mapping to find arts events and workshops near you for people living with dementia and carers

Alzheimer’s Society provides new training course on ‘Understanding dementia and learning disabilities’

Housing sector has key role to play in dementia support – Guinness Partnership report launched today

NDAA collaborator Dr Trevor Jarvis passes away – read our tribute to Trevor

CQC release report on standards of social care in prisons with stark figures around dementia

NICE produce a patient decision aid to help people affected by dementia to discuss antipsychotic medicines with their healthcare professionals

Want to submit your own stories for the newsletter? We’d love to hear from you, click below to contact us.

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