National Dementia Action Alliance Newsletter May 2019

 

Updates from the National Dementia Action Alliance for May
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Our May newsletter features exciting news about our new website and our Dementia Action Week campaign. There’s also a member achievement, our regular “5 minutes with” feature, plus details on our upcoming webinar

Welcome to the May edition of the National Dementia Action Alliance newsletter which includes exciting news about our new website which has now launched! There’s also news of our new Dementia-Friendly Hospital Charter Poster to be displayed in hospitals signed up to the Charter to let people living with dementia and carers know what they can expect during a hospital visit.

Also this month there’s the latest instalment of our 5 minutes with feature with Grace Meadows who is Programme Director at Music for Dementia 2020 and this month’s achievement from 2018 comes from Royal College of Speech and Language Therapists. There’s also details of a new webinar with Tide plus updates from NDAA members The Alzheimer’s Show, RemindMe Care, Dementia UK, Livability, Dementia Adventure, Alzheimer’s Society and MacIntyre.

The Dementia-Friendly Hospital Charter Poster was part of our Dementia Action Week 2019 campaign and we’d like to hear what our members got up to last week, to feature in our upcoming newsletters. If you’d like to let us know about your work for DAW2019 contact us at NDAA@alzheimers.org.uk.

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New NDAA website launched and Dementia Friendly Hospital Poster released
May has been a big month for NDAA and we’re delighted to say we launched our new website for Dementia Action Week 2019. We’re really pleased with the new site, which has been developed with the help of our members, people living with dementia and carers. We want to thank everyone involved. If you have questions about the new site you can visit our website FAQs page and  It would be great if members could update links on their sites. The new url is www.nationaldementiaaction.org.uk and to request our new logo contact us at NDAA@alzheimers.org.uk.

Also new this month, we have produced a poster that can be displayed in hospitals that summarises the elements of the Dementia-Friendly Hospital Charter that people living with dementia and carers can see in clear view when they visit. The poster is available for all hospital trusts that are signed up to the Charter and aims to raise awareness of the standards of care that are expected and ultimately to improve the experience of people living with dementia and their carers when they visit hospital. Frank Arrojo from Tide was a key contributor and has written a blog on working on the poster. To find out more about the poster click below.

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NDAA webinar in collaboration with tide on BAME communities and dementia: Learnings from the Dementia Dekh Bhaal project

NDAA is delighted to announce that we will be hosting a new webinar in collaboration with tide on Tuesday 25 June 2019. The webinar will be presented by Dementia Dekh Bhaal Project Manager, and former carer, Shahid Mohammed from tide. The session will focus on the key challenges for people living with dementia and carers from BAME communities as well as learnings from the Dementia Dekh Bhaal project. For more information on the project you can read a blog from Shahid here. Registration for the webinar is now open, click below to book your place.
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5 Minutes with Grace Meadows from Music For Dementia 2020

We caught up with Grace Meadows who is Programme Director at Music for Dementia 2020. Within the interview Grace told us about the two-year long campaign of the organisation, the announcement of their new ambassador, Lauren Laverne and the benefits of music for people living with dementia. Further details on Music for Dementia 2020 can be found at www.musicfordementia2020.com and to read the interview click below.
 
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NDAA members get discounted places for The Alzheimer’s Show on 7 and 8 June
The Alzheimer’s Show is the UK’s leading event for families, carers, healthcare professionals and those living with dementia or memory loss. The two-day conference and exhibition is designed to provide help, resources, information and advice, as well as showcasing the latest and best products and services and will run on Friday 7th and Saturday 8th June 2019 at Olympia London

A 50% ticket discount is available to NDAA members using the code DEMA19. One-day tickets will cost £10, concessions £7.50 and those living with dementia are entitled to free entry. For further information and to book tickets visit www.alzheimersshow.co.uk.  

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NDAA member achievements – Royal College of Speech and Language Therapists

For our annual report 2018/19 we asked our members to submit an achievement relating to supporting people living with dementia and carers they were most proud of from 2018. Each month we’ll be sharing one of these and celebrating the fantastic work our members do. This month we hear from Royal College of Speech and Language Therapists as the 2018 NICE updated guidelines on dementia included many of their recommendations for change. Those included adapting communication styles to improve interactions with people living with dementia and involving a speech and language therapist when people require assistance with eating and drinking.

Click below for full details.

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NDAA member RemindMe Care has launched a new website called ReMeLife and also a new dementia care app for families

NDAA member RemindMe Care has launched a new website called ReMeLife and also a new dementia care app for families. ReMeLife is an online membership portal that provides daily care and general news, information on care solutions and access to discount priced partner products. It’s here that you can download RemindMecare (aka ReMe). ReMe is Activity Based software that provides engaging activities and therapy, from advanced reminiscence, cognitive and music therapies to games and entertainment, and enables care circle connectivity through its communication module.

To read the full story click below.

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Dementia UK release a range of short films that show the impact on young people supporting family members with dementia

Dementia UK have produced a new range of resources to support children and young people affected by dementia which are all available on the Dementia UK website. The resources feature Sam, Joe, Emily and Denneil who explain about their experiences of watching their relative change, as well as giving insight on keeping connected with the person with dementia. The focal point of the campaign is a powerful poem by Denneil Dunbar, an aspiring spoken word poet from Croydon, whose work describes what it’s like supporting his mum who has dementia. The pages also provide advice for young people on communicating with people living with dementia.

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Other NDAA news – click for details

Alzheimer’s Disease International are conducting the world’s largest survey on people’s attitudes around dementia. Entries open until 14 June 2019

Livability launched their new Travelling Together – Dementia Inclusive Church Guide to encourage and inspire churches to take their next steps towards dementia inclusion

NDAA are carrying out a survey with Dementia Adventure and want to hear from people affected by dementia within the LGBT+ community around support

Alzheimer’s Society are calling on Government to provide urgent investment in high-quality, personalised care through a dedicated Dementia Fund

NDAA Steering Group member Keith Oliver has written a new book entitled ‘Dear Alzheimer’s: A Diary of Living with Dementia’ and has written a blog about it

MacIntyre published a series of updates during Dementia Action Week 2019 including details of the easy-read version of our Dementia Statements 

Want to submit your own stories for the newsletter? We’d love to hear from you, click below to contact us.

 

 

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National Dementia Action Alliance
2nd floor, 43-44 Crutched Friars, London, EC3N 2AE020 7423 5185
NDAA@alzheimers.org.uk
www.dementiaaction.org.uk

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