Mycarematters launches the My Future Care Handbook

Mycarematters recently launched the My Future Care Handbook, an interactive workbook to help people think about, make and record decisions about their future. It provides the information and tools necessary to create an advance care plan, but covers much more than just making plans for one’s end of life. It has been described as a one-stop shop for all things related to later life and beyond, from compiling a bucket list to writing a will, from creating a music play list to considering where to live and/or be cared for, and much more.

People living with dementia and carers have been involved in the design and content from the outset and have also reviewed the final document. These are just a few of their comments:

I think that you must have been reading all of our minds, because for many months on the Zoomettes [a group of people living with dementia and chatting on zoom every week], we have spoken about end of life care. How to go about it and what we need to do. Thank you for doing what we’ve been talking about for months and months. It’s really good that you have everything in one place.” Chris Maddocks, living with early onset vascular dementia and Parkinson’s. Ambassador for Alzheimer’s Society, Steering group member of 3NDGW and Dementia Voices (DEEP).

“The Handbook is literally a one-stop-shop for anything and everything future care related. What makes this resource particularly useful is how accessible it is. It takes what is a really tough topic and makes it as easy to address as it’s ever going to be.” Beth Britton, ex-carer and award-winning campaigner, speaker and expert in ageing, health and social care.

“It feels like a gentle process. A simple, straightforward, tour of everything we needed to talk about.” Wendy Mitchell, author, living with dementia.

It’s very clear this wasn’t done by a medical professional alone… the carers voices are through it, the voices of the people with long term conditions are through it. That’s what makes it so precious.” Agnes Houston MBE, author, living with dementia.


For further information email

To purchase a copy of the Handbook visit

The My Future Care Handbook is published by Mycarematters, a not-for-profit social enterprise with a mission to improve people’s experience of care.

© National Dementia Action Alliance 2020. All rights reserved

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