Action Plan

YoungDementia UK is the national charity dedicated to working with everyone affected by young onset dementia to provide them with information, support, connections and resources to help them to adapt and live life.  

The Young Dementia Network is a YoungDementia UK initiative for people living and working with young onset dementia. The Network pursues a common purpose to influence policies, improve services, create resources and provide a platform for people affected by young onset dementia. 

We strive to raise awareness and increase understanding of young onset dementia, its impacts and challenges and the need for age-appropriate support amongst professionals and the general public. 

Commitment 1 - Relating to: Diagnosis

To inform GPs about young onset dementia and its possible symptoms.

How will your organisation achieve Commitment 1?

We have created a guide to diagnosing young onset dementia for GPs that aims to inform them of possible symptoms, encourage conversations between the GP and their patients as well as offering a referral pathway to memory or learning disabilities services.  

We have also created a series of materials for GP surgeries to help raise awareness of young onset dementia and have created a Personal Checklist leaflet for anyone who has concerns about signs and symptoms of young onset dementia.  

The Personal Checklist  is not a diagnostic tool but is intended to be used as a checklist which individuals can use to record symptoms they, or a family member or friend, may be experiencing and then, if necessary, use it to aid a discussion with their GP.

We will continue to promote these resources on a on-going basis in order that awareness is raised of the signs and symptoms of young onset dementia as well as asking for speedier, accurate diagnosis delivered in a compassionate and understanding way. 

  • We have the right to an early and accurate diagnosis, and to receive evidence based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.

Commitment 2 - Relating to: Services & Information Provision

To provide information for people who are affected by young onset dementia so they are able to live a good quality life and have a voice.

How will your organisation achieve Commitment 2?

The Young Dementia Network will continue to offer a voice to those affected by young onset dementia, to improve services, policy and resources.

YoungDementia UK developed a series of digital film clips  to offer support and information to people who are newly diagnosed. These clips featured people who have a diagnosis and family members talking about a particular challenge, how they overcame / managed it.

We have also developed a leaflet for Memory clinics to inform individuals of  national organisations who could offer support/information about young onset dementia. and ID cards for people who have a diagnosis and their supporters to help retain independence when out and about.

Our website, social media and newsletters contain lots of information and positive stories about how to adapt and live life as well as useful resources and informaiton about young onset support services nationwide.  

  • We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future.

Commitment 3 - Relating to: Inclusion/Co-Production

To connect individuals, professionals, organisations within the Young Dementia Network so they are able to share best practice, support each other with challenges and share ideas.

How will your organisation achieve Commitment 3?

We will use our monthly newsletters, website, publications, social media and conferences / events to share best practice, young onset news and information as well as opportunities to comment or share ideas and connect with others. 

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.