Involve Experts by Experience in delivery: We are committed to further developing the involvement of people with dementia and family carers in the design, delivery and evaluation of our education and training, research and consultancy projects. We will ensure that effective and meaningful involvement is present in all of our work and that those people that are sharing their ‘lived experience’ and providing advice know how we are using their advice and the impact of their input in each of our projects, and publish about the input that our experts bring to the centre’s work.
How will your organisation achieve Commitment 2?
We have a panel of experts by experience who informs all aspects of our portfolio of research education and training and consultancy. Clare Mason, our ‘Experts by Experience’ lead in the centre, continues to actively promote and grow the membership of our lived experience panel of experts so that more people who are interested in working with us have the opportunity to do so bringing fresh and different perspectives to our work. Catherine Powell, Alan Blighe and Murna Downs published a paper with one of the carer reference panel members for the BHiRCH (Better Health in Residents in Care Homes) project. Powell, C., Blighe, A., Froggatt, K., McCormack, B., Woodward‐Carlton, B., Young, J., Robinson, L. and Downs, M., 2018. Family involvement in timely detection of changes in health of nursing homes residents: A qualitative exploratory study. Journal of clinical nursing, 27(1-2), pp.317-327.