Action Plan

The University of Bradford’s Centre for Applied Dementia Studies is a centre of excellence engaged in research, education and training in dementia care. Our work to support people to live well with dementia was recognised by the prestigious Queen’s Anniversary Prize for Further and Higher Education. We are engaged in an ambitious portfolio of applied dementia research which informs our online teaching and face-face training and consultancy. We are at the forefront of using research to enhance the lives of people with dementia and their families, and to support the practitioners and professionals who work with and care for them.

Commitment 1 - Relating to:

Commitment one is – we will work in partnership with care providers and the public: We will actively engage with our key health and social care partners to ensure our strategies related to Dementia Care are aligned and will seek to establish shared projects that will impact on the self-worth and sense of control of people with dementia and carers.

 

How will your organisation achieve Commitment 1?

 

We will continue to participate in efforts at all levels to ensure we hear the perspectives of and advocate for the needs and rights of people living with dementia. For example: • Andrea Capstick co-authored, with a panel of European academics and people living with dementia, the Alzheimer Europe discussion document: Dementia as a disability: Implications for ethics, policy and practice. Andrews J, Capstick A, Geoghegan C, Georges J, Gove D, Libert S, McGettrick G, Rochford-Brennan H, Rohra H, Vehmas S and Williamson T (2017) Dementia as a disability: Implications for ethics, policy and practice. A Discussion Paper. Luxembourg: Alzheimer Europe. http://dx.doi.org/10.1080/13607863.2017.131733 • We are members of the Bradford based Wolfson Centre which will develop new models of care for frail elderly patients, those with dementia and those facing debilitating musculoskeletal conditions. It will also work to improve systems of care for the terminally ill. We have held one workshop so far on the topic of healthy ageing with colleagues from Universities of Leeds and Bradford and with representatives from both Bradford NHS Trusts. Colleagues shared their current research and worked together to consider what are the current and future (5 years hence) research agendas and the opportunities for Wolfson.

  • We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future.

Commitment 2 - Relating to:

Involve Experts by Experience in delivery: We are committed to further developing the involvement of people with dementia and family carers in the design, delivery and evaluation of our education and training, research and consultancy projects. We will ensure that effective and meaningful involvement is present in all of our work and that those people that are sharing their ‘lived experience’ and providing advice know how we are using their advice and the impact of their input in each of our projects, and publish about the input that our experts bring to the centre’s work.

 

How will your organisation achieve Commitment 2?

 

We have a panel of experts by experience who informs all aspects of our portfolio of research education and training and consultancy. Clare Mason, our ‘Experts by Experience’ lead in the centre, continues to actively promote and grow the membership of our lived experience panel of experts so that more people who are interested in working with us have the opportunity to do so bringing fresh and different perspectives to our work. Catherine Powell, Alan Blighe and Murna Downs published a paper with one of the carer reference panel members for the BHiRCH (Better Health in Residents in Care Homes) project. Powell, C., Blighe, A., Froggatt, K., McCormack, B., Woodward‐Carlton, B., Young, J., Robinson, L. and Downs, M., 2018. Family involvement in timely detection of changes in health of nursing homes residents: A qualitative exploratory study. Journal of clinical nursing, 27(1-2), pp.317-327.

  • We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it.

Commitment 3 - Relating to:

Ensure evidence-based approaches to improving dementia care: We will grow our research to create new knowledge that will translate into improved outcomes for people living with dementia and their families. We will continue to design research studies that seek to improve the lives of people living with dementia and their family carers. We will continue to promote opportunities for people with lived experience to be involved in the design, planning and delivery of our research activity. We will co-produce papers for publication on the topic of involvement in research.

 

How will your organisation achieve Commitment 3?

 

Continue to secure further external funding to push the boundaries of our knowledge of what helps people lead a good life with dementia, in collaboration with people directly affected by dementia and with national and international research and practice colleagues. We will continue to publish the outcomes of our research activity and include co-produced papers developed with experts by experience and researchers. Sahdia Parveen, Gary Fry and Jan Oyebode have had a paper about the Caregiving Hope study accepted in Dementia; the International Journal of Social Research and Practice. Involving minority ethnic communities and diverse experts by experience in dementia research: The Caregiving HOPE Study (in press) Sahdia Parveen, Sandra Barker, Ripaljeet Kaur, Fionnuala Kerry, Wendy Mitchell, Alex Happs, Gary Fry, Val Morrison, Richard Fortinsky & Jan R Oyebode. Dementia; the International Journal of Social Research and Practice.

  • We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.

Commitment 4 - Relating to:

Ensure accessible training and education: We will further develop our education and training in order to widen access to all strata of the health and social care workforce, working in partnership with people with dementia and their families. Developing and delivering education and training opportunities in partnership with our experts by experience panel members identifying innovative ways for their voice to be heard in training and education for the current and future dementia workforce.

 

How will your organisation achieve Commitment 4?

 

Launch our new MSc in Dementia Studies which is focused on leadership for evidence-based practice in the delivery of quality care and services. Andrea Capstick has developed and started delivery of the first module of the new MSc in Advanced Dementia Care, Critical perspectives on dementia: a rights based approach, with a cohort of 22 students. Danielle Jones and Ana Barbosa are also instrumental in this and in the development and delivery of the new course going forwards. We will continue to develop leaders in person-centred dementia care and research through a variety of training and education programmes for people who work with people living with dementia. For example Gail Mountain has worked with Dr Angela Grange (Head of Nursing, Research & Innovation /Bradford Institute for Health Research /Quality & Safety Research Bradford Teaching Hospitals NHS Foundation Trust) to obtain funding for a clinical academic doctorate in nursing or allied health in the topic of dementia in acute care. We will disseminate best practice knowledge through a variety of channels including publications and public lectures at conferences in the UK (e.g. UK Dementia Congress) and internationally and through conventional and social media.

  • We have the right to an early and accurate diagnosis, and to receive evidence based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.