Action Plan

A health and social care consultancy working in adult and older people's mental health, dementia, and mental capacity. I focus on promoting people's rights, citizenship, social inclusion, participation and empowerment. I have many years expertise and experience in policy, service and practice development and delivery, evaluation, social research and consultation, training, partnership working, and involving people with lived experience, practitioners, service providers, third sector and statutory organisations at both local and national levels.

Commitment 1 - Relating to:

My consultancy will continue to support Dementia UK’s Lived Experience Advisory Panel (LEAP) for as long as I’m required, to enable the views and voices of people with dementia and family carers to help shape Dementia UK’s current and future work.

 

How will your organisation achieve Commitment 1?

 

Co-ordinating and supporting LEAP meetings, and LEAP members to meaningfully contribute their lived experience to Dementia UK. Help produce an ‘Influencing Pack’ for panel members, Dementia UK ambassadors, etc. to use to promote Dementia UK and Admiral Nurses in their local area. Ensure that LEAP is embedded into the structure of Dementia UK for the future

  • We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it.

Commitment 2 - Relating to:

I hope to continue to be Chair of the Southwark Dementia Action Alliance (SDAA) and ensure its work makes Southwark a more dementia friendly, accessible and inclusive place to live for people affect by dementia.

 

How will your organisation achieve Commitment 2?

 

Working closely with the SDAA co-ordinator I will continue to promote the SDAA and encourage organisations to join. I will support the activities of the SDAA whenever possible including chairing meetings, representing the Alliance at events, meeting with Alliance members, and running dementia friends’ sessions. I will also work to ensure the lived experience of people affected by dementia living in Southwark is at the centre of the Alliance’s work.

  • We have the right to an early and accurate diagnosis, and to receive evidence based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.

Commitment 3 - Relating to:

I hope to have further opportunities to promote a rights and equalities agenda for people affected by dementia. This will include my roles as Chair of the SDAA and Director of the Dementia Alliance for Culture and Ethnicity (DACE), and being the co-author with Professor Julian Hughes of a book on dementia, rights and values called ‘The Dementia Manifesto: Putting values-based practice to work’’.

 

How will your organisation achieve Commitment 3?

 

The SDAA plans to develop its connections with people affected by dementia living in Southwark to ensure that their lived experience is central to the SDAA’s work. The SDAA also hopes to work more closely with people from Black, Asian and minority ethnic communities affected by dementia through collaborating with DACE and supporting the work of the Pearl Network to develop culturally relevant reminiscence resources. It is anticipated that the ‘Dementia Manifesto’ will be published by Cambridge University Press in 2019.

  • We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.

Commitment 4 - Relating to:

Through my consultancy I have successfully established and supported an advisory panel made up of people with dementia and family carers for Dementia UK called the Lived Experience Advisory Panel (LEAP) to advise and provide feedback to the organisation. LEAP has fourteen members including five people with dementia and seven family carers, is co-chaired by a person with dementia and a carer, and is supported by DEEP and tide. It has met five times, including one meeting with a DEEP group in York, and has provided valuable feedback to Dementia UK on draft leaflets, website development and online information, a helpline survey and a social media campaign. LEAP has initiated or suggested work to increase the availability of Admiral Nurse services, to support Dementia UK’s strategic plan, and improve dementia care. It has received very positive feedback from the organisation including trustees, is becoming an integral part of Dementia UK, and its co-chairs and members have been invited to speak at, and chair national events.

 

How will your organisation achieve Commitment 4?

 

Being part of the NDAA enables my consultancy to be connected with other organisations working in the field of dementia, be informed by their work and share the work I am involved with. Attending NDAA events has provided me with the opportunity of keeping abreast with the latest developments in dementia policy and practice. Being a member of the NDAA is also important in helping me to fulfil my role as Chair of the Southwark Dementia Action Alliance.

  • We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.