Action Plan

The 3NDWG is a working group of people living with dementia across England, Northern Ireland and Wales. Members are based all across the three nations, creating a network of voices living with dementia who can lead on regional projects. A steering group of 12 people with dementia drawn from the membership lead the 3NDWG. Our aim is to contribute to improving the lives of those living with dementia, and those who support them; and to help the work of professionals and policy makers working in these areas.

Commitment 1 - Relating to:

We will reach out to those living in care homes to include them in the 3NDWG, and to ensure that our campaigning and advocacy work also benefits them and is relevant to their needs. This is part of our commitment to represent people with all types and at all stages of dementia.

 

How will your organisation achieve Commitment 1?

 

We recognise that many people with dementia may not be aware of us, or will find the sign up process difficult. We will therefore be proactive in identifying care homes, approaching their management directly and explaining to them and those living there the importance and relevance of the 3NDWG. We are currently planning to produce a leaflet with information specific to care homes and those living in them. We will discuss the best option for signing up new members; whether a care home may sign up several residents collectively and pass on information this way; or whether a person may wish to sign up individually. We will discuss this plan in our next few meetings and decide on a method which will most benefit those living with dementia in care homes.

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.

Commitment 2 - Relating to:

We will continue to fight against the funding cuts to local authorities which have led to gaps in social care provision. We will continue to demand answers and to influence decision makers to enact change, so that people affected by dementia don’t have to keep paying out of pocket to meet their health and social care needs.

 

How will your organisation achieve Commitment 2?

 

We will promote our existing petition (https://you.38degrees.org.uk/petitions/social-care-and-dementia) which demands a debate at the highest level of government and a solution to the gaps in social care provision which disproportionately impact upon all people affected by dementia. In our next few meetings, we will plan our campaigning approach and will identify key people to influence and demand change from. We will gather evidence and experiences from those affected by dementia to strengthen our case, and to make sure we are fighting for issues that are genuinely relevant to them. We will use our collective voice to demand change.

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.

Commitment 3 - Relating to:

We will curate a clear, informative and relevant website which will act as a vital hub for people living with dementia, carers and professionals.

 

How will your organisation achieve Commitment 3?

 

We will continuously update the site with resources which we find helpful, and will signpost others to resources and services which will be helpful to them. We will continue to use the site to document our own achievements and those of others affected by dementia. We will use the site to advertise events and opportunities which are of relevance to people affected by dementia. We have already created a five minute film to go on the front page of the website, which explains what the 3NDWG do, and our aims. We will share this video to encourage new members and to show people the friendly yet ambitious nature of the group. We will use the site to offer our own experiences and how to get in touch, and to show people how they too can become part of the conversation and call for change.

  • We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it.