Organisation Name

Three Nations Dementia Working Group


Organisation Summary

The 3NDWG is a working group of people living with dementia across England, Northern Ireland and Wales. Members are based all across the three nations, creating a network of voices living with dementia who can lead on regional projects.A steering group of 12 people with dementia drawn from the membership lead the 3NDWG.Our aim is to contribute to improving the lives of those living with dementia, and those who support them; and to help the work of professionals and policy makers working in these areas.

What sectors does your organisation work in?


Why is your organisation committed to the NDAA and the Dementia Statements?

We believe that together our voices are stronger, and being part of the national DAA allows us to connect to even more people across the three nations who are affected by dementia. We also believe that what is necessary now is not talk but action; we therefore agree with the principles of the NDAA. The 3NDWG and the NDAA gives a platform for us to collaborate with professionals in order to share learning and experience to help make a difference for everyone affected by dementia or working to support and care for us. Evidence of close alliance between NDAA and 3NDWG is that the same person with dementia is a member of both steering groups which helps to align both constructively together. The Dementia Statements underpin all of our work because they were rewritten by and for people with dementia; many of our members were involved in the rewriting process. The Statements are based on our rights; they are not optional. This is also key to a lot of the campaigning work that we do; we are fighting to have our rights upheld. A member of the 3NDWG steering group travelled to the ADI conference in Chicago in July 2018, where he spoke on a global stage about the importance of the Dementia Statements, how they were written, and how they are starting to inform global policy and practice. One of the Statements says; We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it. The 3NDWG is made up of people who have many skills, experiences and views; we want to be recognised as individuals with our own strengths and stories, and being part of the 3NDWG is a way for us to contribute these to society.