Action Plan

The Lewy Body Society is a charity registered in England and Wales (number 1114579) and in Scotland (SC047044) whose mission is to fund research into Lewy body dementia and to raise awareness of the disease. DLB is the second most common type of neurodegenerative dementia in older people after Alzheimer’s, accounting for approximately 15-20% of all people living with dementia

Commitment 1 - Relating to:

To promote awareness of Lewy Body Dementia in order that people living with the disease receive the correct diagnosis.

 

How will your organisation achieve Commitment 1?

 

Working with the NHS Alliance and ITN Productions we have funded and produced a film about DLB which was launched at the NHS Alliance summit to an audience of GPs and other medical professionals. We will also be reviewing all our information and literature.

  • We have the right to an early and accurate diagnosis, and to receive evidence based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.

Commitment 2 - Relating to:

The Lewy Body Society is a recent member of the AMRC (Association of Medical Research Charities). People living with dementia and their carers will be involved in our panels.

 

How will your organisation achieve Commitment 2?

 

In addition to our SAC (Specialist Advisory Committee) we are setting up a panel of people LWD and their carers to input to the grant review process and to be involved with the research from the beginning.

  • We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.

Commitment 3 - Relating to:

Promote Awareness of DLB

 

How will your organisation achieve Commitment 3?

 

People living with DLB should be able to live where they choose and in the environment that is best for them. People are being turned away from a Care Environment and we will educate medical professions to contribute to this not happening.

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.