Action Plan

LSN promotes the use of life stories and narrative approaches to help people retain their sense of self and remain connected with their families, friends and communities. We work with communities and local organisations to develop sustainable engagement strategies. We host the national involvement network for carers, tide – together in dementia every day, enabling carers and former carers to have a powerful, collective voice, using their lived experience to raise awareness of their unique needs and rights to influence practice, policy and research at all levels.

Commitment 1 - Relating to:

To disseminate best practice from the findings of our completed Department of Health funded project ‘Beyond the Front Door’ as part of the Prime Minister’s Challenge on Dementia 2020 Post Diagnostic Support commitment, recognising the importance of the concept of ‘home’ – linked to identity and wellbeing. http://www.lifestorynetwork.org.uk/beyond-the-front-door-project-new-report/

 

How will your organisation achieve Commitment 1?

 

By developing some toolkits to influence best practice for support staff working with people affected by dementia across the range of agencies (housing, NHS trusts and NHS and local authority commissioners), with responsibility for both commissioning and providing meaningful post-diagnostic care and support. We will also be hosting 2 Conferences in 2018 to demonstrate this work.

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.

Commitment 2 - Relating to:

We are working with an increasing number of organisations to provide support to them on the development of sustainable engagement strategies within diverse communities, recognising the equality of citizens with professionals

 

How will your organisation achieve Commitment 2?

 

We will continue to be influential by raising awareness & campaigning for 'carer positive' engagement approaches within organisations, whilst highlighting the needs & rights of specific groups, including BAME, male & young carers. We will also be highlighting the impact of caring on employment & raising awareness with employers & Unions

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.

Commitment 3 - Relating to:

We give carers & former carers the tools, confidence & skills to speak out & be respected & recognised as equal partners in care through tide's unique Carers Development Programme

 

How will your organisation achieve Commitment 3?

 

We will continue to co-produce carer involvement standards so that carers & former carers are respected & recognised as equal partners and we will actively seek opportunities for the diverse & empowered membership of tide to influence policy & practice at all levels by being involved as equals in meetings/events/webinars/research etc.

  • We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future.

Commitment 4 - Relating to:

We support a range of organisations to ensure that they develop sustainable carer participation strategies underpinned by principles of co-production and within a rights based approach.

 

How will your organisation achieve Commitment 4?

 

By successfully ensuring that carers of people living with dementia are at the centre of decision making through connecting & working with emerging organisations to advise & support them with sustainable carer involvement

  • We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future.