Action Plan

We provide space for family carers of people with dementia to inspire them to learn, connect and receive practical support to feel empowered in their caring role. We invest in research to understand family carers’ experiences, needs and desired outcomes, and campaign to improve the support they receive.

Commitment 1 - Relating to:

Dementia Carers Count commits to providing evidence based services and support to family carers. DCC services will be developed and delivered by qualified and experienced health and care professionals. We will avoid diluting the quality of services by 'training trainers'.

 

How will your organisation achieve Commitment 1?

 

Dementia Carers Count have extensively reviewed the evidence base for dementia carers interventions and adult learning methodologies. All our services use evidence based interventions and, where the evidence has not yet been developed, we commission independent academic evaluation of our services. Our 3 day courses tick every one of the recommendations in section 1.11 Supporting Carers in the NICE guidelines 2018. Dementia Carers Count has a Carers Advisory Panel consisting of 7 carers who provide advice and guidance to all aspects of our service development. Co-production is at the heart of the way we work. Our Service Development team are - or have been - frontline practitioners such as occupational therapists, speech and language therapists and clinical psycholgists.

  • We have the right to an early and accurate diagnosis, and to receive evidence based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.

Commitment 2 - Relating to:

Dementia Carers Count commits to recognising family carers as individuals in their own right and not simply as 'dementia carers'. To that end we take time to enable carers to focus on themselves and their right to a fulfilling life.

 

How will your organisation achieve Commitment 2?

 

Dementia Carers Count 3 day courses include sessions on personality profiling to enable carers to focus on themselves and resilience to enable carers to remain strong or to rebuild their strength. Through this exploration we facilitate carers to think through how they can be supported by family, friends and play an active part in their community so that they remain connected. We also facilitate carers in repositioning themselves at times when their caring roles and responsibilities change.

  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.

Commitment 3 - Relating to:

The Dementia Carers Count Professor of Family Care in Dementia is a joint appointment with ourselves and the Association for Dementia Studies, University of Worcester. We have committed to joint funding the post and to joint ownership of the research programme.

 

How will your organisation achieve Commitment 3?

 

The Dementia Carers Count Professor of Family Care in Dementia central focus will be on family carers, investigating their experiences, needs and outcomes. The postholder took up the position in November 2018 and so throughout 2019 and beyond we will continue to develop the research programme and share emerging evidence across the health and care sector. We will make a particular endeavour to translate research into practice which means that our findings will be disseminated as much across front line commissioning and provision as within academic networks.

  • We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.