The NDAA regularly collaborates with our members or organisations we’ve partnered with on campaigns to produce resources related to a variety of areas within dementia care and support. A selection of these are listed below as well as previous campaigns we’ve run. If you would like to suggest a project or collaboration with the NDAA please contact us on NDAA@alzheimers.org.uk.

NDAA Collaborations

MacIntyre’s Easy Read Dementia Statements

NDAA member MacIntyre’s Health, Dementia and Wellbeing Team were thrilled to release Easy Read Dementia Statements at the National Dementia Action Alliance Conference 2019.

The I statements were created in 2010 by people affected by dementia and provided an ambitious yet achievable vision for how society could enable them to live well, such as “I have support that helps me live my life”. In 2017 a review took place, which involved people affected by dementia creating a new vision, renamed the Dementia Statements.

However, MacIntyre’s Health, Dementia and Wellbeing Team recognised that this valuable resource needed to be accessible for everyone; including people with a learning disability and dementia. As a result they developed Easy Read Dementia Statements, click below to view.

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Foundation for People with Learning Disabilities, which is part of the Mental Health Foundation have released a report ‘Hidden in Plain Sight – Dementia and Learning Disability’.

It is written in partnership with the National Dementia Action Alliance, Voluntary Organisations Disability Group (VODG), MacIntyre Charity, and Surrey and Borders Partnership NHS Foundation Trust. It also incorporates the British Psychological Society (BPS) commissioners’ guide. Latest research shows that today, more than a million people with learning disabilities are not being appropriately supported in national dementia policy.

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Dementia is on the increase. It is estimated that there are currently 850,000 people with dementia in the UK, more than ever before, and this number is projected to increase rapidly over the next few decades. As age is the biggest risk factor for dementia, increasing life expectancy is the driving force behind this projected rise.

Receiving a diagnosis of dementia can be devastating for the person and their family and friends. It is important that, at this time, the person diagnosed receives appropriate and timely information, care and support to ensure that they and their carers can live as fulfilling lives as possible, and prepare for the future.

Local authorities have now been under sustained funding constraints for many years and continue to be so. Despite such pressures, this publication produced in partnership with the National Dementia Action Alliance highlights some notable and innovative practice by councils in supporting people living with dementia after their diagnosis.

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A new report has been published by the Voluntary, Community and Social Enterprise (VCSE) Health and Wellbeing Alliance and produced by authors from the Race Equality Foundation on Dementia and Black, Asian and Minority Ethnic Communities. The National Dementia Action Alliance were consulted as a partner for the report as part of our Dementia Seen and Heard Campaign and members such as Housing Learning and Improvement Network (LIN), Dementia Adventure, Jewish Care and Irish in Britain.

The report includes findings on diagnosis, inequalities between and within communities, awareness and support for carers. Recommendations are also provided around services for people living with dementia from BAME communities including local partnerships coordinating activities being most effective, required resources and how often voluntary sector organisations are leading the way.

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Bring Dementia Out was launched in January 2019. As part of this innovation, National Dementia Action Alliance are proud to have co-produced a booklet, online hub and poster with LGBT+ people affected by dementia, Alzheimer’s Society, and LGBT+ organisations (including Switchboard in Brighton and Hove, LGBT Foundation in Manchester, and the National LGBT Partnership).

Bring Dementia Out is an innovation that aims to help LGBT+ people affected by dementia get better access to support and information in Brighton and Hove and Greater Manchester. The booklet sits alongside a series of resources, including a video, online hub and posters, to raise awareness and understanding of challenges faced by LGBT+ people affected by dementia. This was tested in Brighton and Hove and Greater Manchester over January and February 2019.

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British Psychological Society Faculty for Psychology of Older People and National Dementia Action Alliance Papers

In November 2013 NDAA member the British Psychological Society shared a series of resources that provided information around diagnosis of dementia and how best to support people before and after. Considered in the papers provided were  counselling prior to assessment, how the assessment should be conducted, interventions professionals can make and the perspective of someone living with dementia among other topics.

Click below to access these documents:

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NDAA Past Campaigns

At least 670,000 people in England have dementia and this number is set to double in the next 30 years. It is estimated that at least 550,000 people act as primary carers – this by no means reflects the number of children, extended family and friends whose lives are also affected. Caring for a loved one with dementia is one of life’s hardest challenges. Despite their numbers and needs, carers often care alone. Support is too often provided late and focused on costly and stressful crisis management. This needs to change.

Leading national charities, public bodies and private providers are coming together to meet this challenge through the Carers’ Call to Action. They will be providing a coherent, coordinated and concerted response to this intolerable situation.

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The National Dementia Action Alliance’s first call to action was launched in 2011 on the use of antipsychotic drugs for people with dementia. The aim of the call to action was to see all people living with dementia, who are receiving antipsychotic drugs, receive a clinical review from their doctor to ensure that their care complied with current best practice and guidelines and that alternatives to medication were considered by 31 March 2012.

To reduce the use of these drugs, people with dementia, their carers, GPs, leaders in care homes and pharmacists, were asked to commit to outlining how they can play their part in ensuring reviews take place. A guide on best practice on the use of antipsychotics was also produced for people with dementia and carers and health and social care professionals.

To access this guide please, click below.

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© National Dementia Action Alliance 2019. All rights reserved

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