Staying Connected

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NDAA member response to Covid-19 and supporting people affected by dementia. #NDAAConnect

This page will be updated regularly, as and when new guidance comes in. If you have any resources you would like added to this page, please email NDAA@alzheimers.org.uk

3NDWG

Webinars hosted by people living with dementia: pandemic self isolation & difficulties

You are invited to regular Zoom webinars hosted by people living with dementia. In these sessions members will be highlighting what they are doing to make self isolation a little easier and also discussing some of the problems and difficulties they are experiencing as a direct result of the pandemic.

Check here for webinars

For details on how to register, contact 3NDWG@alzheimers.org.uk 

Everyone is welcome. Please share with colleagues. The content of our webinars is relevant to professionals working with people affected by dementia, people living with dementia and carers. We also ask you to share this invitation with others who may be interested in joining.

active

Active Minds

Active Minds creators of dementia activities, have released a brand new app for 2020 Support for Care, which is helping families and carers bring joy to the lives of those living with dementia during lockdown.

A new app released in 2020 is helping carers of those living with dementia to generate fun and joyous activities to keep minds active during lockdown. Produced by Active Minds, Support for Care has over 200 different activities suitable for different stages of the dementia journey which can be conducted withing the home.

The app seeks to make activity idea generation easier for those caring for someone living with dementia, to vary offerings and help to improve quality of life and wellbeing. It can be common for activities to become recycled, and the Support for Care app wants to help break this cycle and provide access to a variety of new and supportive fun activities. Check out the product here.

Alzheimer's Society

There are a number of resources on offer to help people affected by dementia during the Covid-19 pandemic.

IDEAL project: How to stay well during the coronavirus outbreak: 5 key messages for people living with dementia IDEAL CDI leaflet for people with dementia ONLINE

Coronavirus Volunteer Toolkit: tips to support people affected by dementia for people who are helping or volunteering in their local communities  Read here

DCAN: Practical ideas for living with dementia during social distancing.

https://distancingwithdementia.org.uk/

Arts 4 Dementia

Interactive arts opportunities during Covid-19.

Arts 4 Dementia are offering a range of resources to help with dementia care during Covid-19. This includes:

Reawakening Integrated, Arts and Heritage (2017): A regional programme, with a framework to integrate arts into dementia services (Dorset)
Music Reawakening (2015): Musicianship and Access for Early to Mid Stage Dementia
Reawakening the Mind (2013): Arts interventions to re-energise and inspire people in the early stages of dementia and their carers.

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British Psychological Society

Guidance supporting older people and people living with dementia during self-isolation.

The guidance looks at meeting the psychological needs of people living with dementia during social isolation. How to help people with memory problems and living with a dementia to understand, remember and follow the Covid-19 advice as well as guidance for older people during self-isolation.

FPOP: Supporting older people and people living with dementia during self-isolation guidance

Cera

Cera has partnered with Virgin Atlantic to retrain and offer employment to airline staff furloughed as a result of the COVID-19 pandemic

The skills possessed by the UK’s airline personnel are highly transferable to social care, and Cera’s unique digital platform will allow them to rapidly recruit, train and deploy them into care roles.

Throughout the COVID-19 outbreak, Cera have had three main priorities as a business:

*To support the Social Care community and provide best-in-class frontline care throughout the UK
*To alleviate pressure from the NHS wherever possible by providing resources
*To get people back to work, particularly those from heavily-impacted industries.

This initiative will facilitate the movement of highly skilled individuals from the aviation industry into secure employment whilst generating more resources for the care sector. Cera are motivated to make a real difference to those who have been affected so directly by COVID-19, while at the same time raising the profile of social care by recruiting thousands of individuals to help the most vulnerable in society.

Read more here

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Dementia Adventure

Free Dementia Skills sessions on offer.

Dementia Adventure are offering free Dementia Skills sessions for family and friends who support someone with dementia, designed to help you think differently about dementia and give you practical guidance to help you in your supportive role.

Check details on their website here.

Dementia Carers Count

Dementia Carers Count has launched a new Virtual Carers Centre for family and friends who are caring for someone with dementia

Dementia Carers Count (DCC) supports family carers of people with dementia and, in these most unusual and challenging times, they are working hard to ensure that carers continue to have access to vital resources and services to help them in their caring role. People with dementia and their carers are experiencing increased isolation, and supporting them now is more important than ever.

DCC’s key services usually consist largely of three-day and one-day evidence-based courses, which are delivered face to face with carers. Due to the current situation, they have postponed these until they are sure that it’s safe for participants and staff to restart them. As such, DCC has developed an exciting range of remote and online services, all of which can be found in the new Virtual Carers Centre. Resources currently include videos from professionals and fellow carers, bitesize courses, blogs with tips and advice, and one-to-one calls with their team of experts. They are continually adding to what they can offer, to make the Virtual Carers Centre an invariable hub for support, both during the current crisis and beyond.

DCC’s Virtual Carers Centre can be accessed here.

Dementia UK

Covid-19 information for families looking after someone with dementia.

Lives on Hold is a new awareness campaign that shows how life for carers of people living with dementia is similar to living in lockdown for many months and often years. Find out more: dementiauk.org/lives-on-hold

Dementia UK have a section dedicated on their website to coronavirus (covid-19), which also features Q&As, leaflets and information and access to the Dementia Helpline.

https://www.dementiauk.org/get-support/coronavirus-covid-19/

There have also shared guidance from Northern Health and Social Care Trust on ‘Supporting Carers and Care Staff to Understand and Respond to Changes in Behaviour in People with Dementia During the COVID-19 Pandemic.’

Supporting People with Dementia During Covid 19 NHSCT

Excelcare

The Excelcare family created a music video, ‘Rainbow of Hope’

‘Rainbow of Hope’, features colleagues from each of Excelcare’s services, passing on messages of love, encouragement and support to one another by sharing words describing their positive experiences during the pandemic.

The inspirational song used for this video was written by Chief Operating Officer, Sam Manning. “It has been heart-warming to see team members, residents, relatives and local communities all unite as one family, to conquer the challenge,” Sam explains, “this song was written with each of you in mind, with special thanks for your dedication and support throughout Covid-19.”

‘Rainbow of Hope’ is available to purchase on Bandcamp by clicking here; with all proceeds going towards the Excelcare Rainbow Fund which aims to give back and reward every one of the frontline carers with a gift voucher to say thank you and support them during this difficult time.

Please click here to watch it!

Hallmark Care Homes

Remaining in contact with family and friends has become even more important during the Coronavirus outbreak and Hallmark has introduced a new App called RelsApp to help keep everyone connected.

RelsApp is an easy to use, safe social network that works on any device and enables the sharing of messages, videos and photos.  Our teams can see when a resident has received a message or photo and, if required, help them to enjoy it, and respond. Video messages from loved ones can be watched again and again, bringing comfort and reassurance.  This aspect is particularly supportive for people living with dementia who miss the touch of a relative and the sound of their voice.

The platform was developed using “closed social networking”. It looks and feels like many other social networks but Howard’s team have ‘closed’ it. You cannot search for anyone to connect with, you have to be invited. Closing a social network makes it a safer place for people who are unfamiliar with technology. During the journey, Howard and his team won the UK IT Industry Award for “Digital Inclusion” and were Runners Up (to the BBC) in the Nominet Awards for “Protecting Users from Threats and Crimes”.

During the Coronavirus outbreak the App has been an invaluable communication tool, helping to keep relatives updated with new initiatives and what’s happening in the homes.  In the short time since the app was introduced, we have shared individual homes’ newsletters, a monthly gardening club newsletter, activities programmes and a new fundraising initiative – The Great Hallmark Scarf-athon.

It has also been a wonderful way to begin building each individual resident a bank of their favourite photographs, memories, clips from films and TV, and music.  Many relatives have uploaded videos of grandchildren and special moments from all over the world for their loved ones to share. Hallmark team members have helped residents to do the same and families have expressed how wonderful it is to be able to see that their relative is safe, well and enjoying life.

RelsApp will continue to be developed further in the future.  At Hallmark we believe there are many more smiles to be had and look forward to working alongside Howard and his team.

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Innovations in Dementia

New resources for volunteers to help support people living with dementia

Tips to share with a volunteer…
Understandably there are many volunteers who are offering to help people with dementia with practical day to day tasks. To help them with a better understanding of your situation DEEP have produced a volunteer guide which you can download and share with them.

And there are also four new short videos, designed for volunteers who are supporting a person with dementia. These are endorsed by the British Psychological Society and Alzheimer’s Society.

http://www.innovationsindementia.org.uk/the-coronavirus-situation/

later life training

Later Life Training

Guidance for physical activity and exercise instructors, teachers and leaders on how to have meaningful conversations.

Later Life Training, a leading traIning organisation from the UK, have devised a series of short online regular movement sessions called Make Movement your Mission. These movement sessions cane be done either in a chair or standing holding onto a support and are being broadcast by Later Life Training UK in response to the current crisis being experienced by seniors.

I CAN Active Calendar

YouTube movement videos

Email Later Life Training

Covid-19 advice sheet for people living with LBD and their families and carers.

Lewy Body Society

The current coronavirus or Covid-19 pandemic is an unsettling and anxious time for everyone. This can be especially so if you have, or care for, someone with a condition such as Lewy body dementia which may increase vulnerability to the effects of the virus.

Newcastle University has produced an advice sheet in collaboration with the Lewy Body Society to help and support you.

Advice sheet for people living with LBD

Memory Tracks

Memory Tracks, has launched an initiative to provide free hand-held digital devices to help residents living in care home isolation communicate with their loved ones.

UK Company Helps to Tackle Care Home Isolation through Video Calling.

A UK-based business, Memory Tracks, has launched an initiative to provide free hand-held digital devices to help residents living in care home isolation communicate with their loved ones. Technology business Memory Tracks has spent the last two years working with care homes to develop a music-based app to support people living with dementia. With their experience in this field the team were aware of the challenges that care homes are currently facing.

The Memory Tracks team want to see more video calling available to these isolated older adults. They are currently raising money via Crowdfunder to provide more devices to care homes and are already in contact with a number of technology providers who can offer devices for free or at a reduced cost .

The fundraising campaign can be found at  www.crowdfunder.co.uk/connecting-families-in-care.

Music-for-Dementia-Logo-01-Small-1

Music for Dementia

Musical Map is a hub of online musical activity suitable for people living with dementia and carers.

Musical Map is a hub of online musical activity suitable for people living with dementia and their carers. Constantly updated, it lists all activities taking place that partner organisations/ musical service providers (and others) have sent of events and classes that have moved online/ virtual.

Anyone wishing to add their service to the map needs to complete an online form via the link below. They will verify the event, add to the map, and promote on their social media channels (Facebook, Instagram and Twitter).

Musical Map

NHS England

Visitor guidance on Covid-19, which mentions dementia.

This visitor guidance applies to all inpatient, diagnostic and outpatient areas.

Check the website for the guidance here.

remindme care

ReMeLife

6 months free use of ReMe activities and communications software

Covid-19 Special Free Offer:

RemindMecare (aka ReMe) provides care facilities with unlimited ready made activities, remote family connectivity and a means to easily create their own digital activities. Hospitals, like Kingston Hospital, home care like Bluebirdcare, care homes and assisted living businesses, as well as partners like Sharp, all use ReMe to support their needs. Importantly, remote family can create activities that are bespoke to the person being cared for, such as making music playlists, sharing photos and uploading albums and videos… and, well it’s a long list. ReMe’s great for the grand kids and for carers. At this time more than ever, we need to better know the person that we’re caring for. Finding common interests is simply good for the soul. And ReMe makes this easy with CST’s, reminiscence and Life Story tools. So, since person-centred care is more important now than ever before, we’re giving ReMe away for FREE. Simply click here to get ReMe.

The Alzheimer's Show

Providing a series of FREE webinars

Starting Thursday 9 July, Alzheimer’s Show will be providing a series of FREE webinars on a range of topics relevant to everyone affected by Alzheimer’s and dementia – whether you’re a carer, family member, or healthcare professional. Each webinar will also include plenty of time for questions – giving you the opportunity to receive expert, specialist advice regarding your specific situation.

Visit the digital hub here.

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tide

Virtual support for carers.

Zoom Wellbeing sessions on Tuesdays from 2-3pm – you will have the opportunity to connect with other carers, find new coping strategies and improve your wellbeing. Email Beau for a list of topics and to book: Beau@lifestorynetwork.org.uk

You can book a chat with a Carer Involvement Lead about your experiences at this time, either via phone or zoom. Email tide and they will arrange a convenient time.

There is a WhatsApp group to connect and support BAME carers in Rochdale.

Take part in a Zoom Coffee and Connect session on Wednesdays from 10:30-11:30am. Email Beau for the link to join: Beau@lifestorynetwork.org.uk

Carers’ experience will continued to be shared through social media and website. If you would like to share your experience please do so on tide’s Facebook, Twitter, or Facebook’s closed group, or contact tide. 

tide virtual support for carers

Following government guidelines, tide have cancelled all face to face events. However, as a team, they are here to support you. If you care for someone living with dementia and would like some peer support during these uncertain times, then join them in their new Facebook Group for virtual support.

Visit www.tide.uk.net/activities

University of Worcester Association for Dementia Studies

Association for Dementia Studies have been developing resources around supporting people with dementia and providing person-centred care in different settings during COVID-19.

Currently they have resources for:

  • Care homes
  • Domiciliary care
  • Family and friends/informal carers

All three resources contain sections on strategies to meet people’s need for human contact and ideas for occupation/activity.

Their resources are freely available via their ADS site.

Webinars!

Due to Covid-19 and the need to stay at home, the NDAA have ran a couple of webinars:

11th May: Innovations in Dementia shared their volunteer resources developed by people living with dementia. To watch this webinar click here.

2nd June: Life Story Network shared their new training programme – ‘Knowing Me Pro!’ To watch this webinar click here.

© National Dementia Action Alliance 2020. All rights reserved

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