Example One From seldom heard to
seen & heard

In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

      • Lesbian, Gay, Bisexual and Transgender + (LGBT)
      • Prison population
      • People with learning disabilities
To read further details on each of these themes click below:

The final report was published in February 2020. Read what we achieved in the 3 years.

Read the report


Why Seldom-Heard Groups?

People from seldom heard groups can sometimes face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness or cultural understanding across health and social care settings. This problem may have become more acute as public service budgets have been cut.

Through our diverse membership the NDAA is well placed to try and improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care.

What have we done?

In June 2017 the NDAA hosted a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups. The roundtables covered dementia and learning disabilities, dementia within prison settings and within the LGBT+ community.

Following these roundtables, a set of recommendations and actions were developed along with a pledge that asks everyone to sign to demonstrate their commitment to this cause. The campaign was then launched in September 2017 at the NDAA Quarterly Meeting held at the Royal College of Nursing, London.

You can view and download full list of From Seldom Heard to Seen & Heard publications, which includes:

  • Briefing papers
  • Roundtable discussions
  • Recommendations
  • Launch Event papers

Read more


Alzheimer’s Society looking for LGBT people to join reader panels

Alzheimer’s Society are looking for LGBT+ people to join their publications reader panels. Help them improve services & support by emailing: publications@alzheimers.org.uk for more info. Read about the Bring Dementia Out programme by LGBT Foundation https://lgbt.foundation/bringdementiaout   Read National Dementia Action Alliance’s From Seldom Heard to Seen and Heard report https://nationaldementiaaction.org.uk/campaigns/report-from-seldom-heard-to-seen-and-heard/   See what NDAA have been doing to support […]

NDAA article in Journal of Dementia Care

The Journal of Dementia Care have published an article by NDAA’s Sarah Tilsed in their most recent edition of their informative magazine. The article is about our campaign From Seldom Heard to Seen and Heard, which looked at the specific challenges faced by people affected by dementia in marginalised or “seldom heard” groups. In order to gather information for the […]

Alzheimer Europe article

Alzheimer Europe have published an article written by NDAA’s Sarah Tilsed, on From Seldom Heard to Seen and Heard. The campaign aims to improve outcomes for people living with dementia and their carers who come from ‘seldom heard’, i.e. marginalised, groups. The research has largely focused on the lesbian, gay, bisexual and transgender (LGBT+) community; on people with learning disabilities; and on […]

Bring Dementia Out

Bring Dementia Out is a new partnership programme led by LGBT Foundation and supported by the Guinness Partnership and in partnership with National Dementia Action Alliance, Brighton & Hove Switchboard and National LGB&T Partnership. The programme seeks to work with lesbian, gay, bisexual and trans people living with dementia, and those supporting them, to explore the unique challenges faced by [...]

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