In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

      • Lesbian, Gay, Bisexual and Transgender + (LGBT)
      • Prison population
      • People with learning disabilities
To read further details on each of these themes click below:

Why Seldom-Heard Groups?

People from seldom heard groups can sometimes face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness or cultural understanding across health and social care settings. This problem may have become more acute as public service budgets have been cut.

Through our diverse membership the NDAA is well placed to try and improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care.

What have we done?

In June 2017 the NDAA hosted a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups. The roundtables covered dementia and learning disabilities, dementia within prison settings and within the LGBT+ community.

Following these roundtables, a set of recommendations and actions were developed along with a pledge that asks everyone to sign to demonstrate their commitment to this cause. The campaign was then launched in September 2017 at the NDAA Quarterly Meeting held at the Royal College of Nursing, London.

You can view and download full list of From Seldom Heard to Seen & Heard publications, which includes:

  • Briefing papers
  • Roundtable discussions
  • Recommendations
  • Launch Event papers

Read more


25/06/2019 – Webinar: Dementia in BAME Communities

Date: Tuesday 25 June 2019 Time: 11am – 12pm Join the National Dementia Action Alliance on Tuesday 25 June at 11am for a one hour webinar exploring dementia in BAME communities. Hosted by Shahid Mohammed from tide (Together in Dementia Everyday), this webinar will discuss the main challenges people living with dementia and carers from BAME communities face. Shahid is […]

Survey for LGBT+ people affected by dementia

This survey is intended to inform Dementia Adventure and National Dementia Action Alliance of the thoughts of people within the LGBT+ community around the subject of support needed on a daily, weekly, and maybe annual basis. The National Dementia Action Alliance is a membership body of 111 national health and social care organisations, all of whom are committed to improving [...]

Seldom Heard Group Themes

Seldom Heard Group Themes See below for further details of the themes of our Seldom Heard Groups campaign: People with learning disabilitiesLGBTPrison populationPeople with learning disabilities Dementia and Learning Disabilities was one of three groups explored by the National Dementia Action Alliance. Read an overview of the issues faced by those living with dementia who also have learning disabilities. Learning Disabilities and [...]

How can you get involved?

How you can get involved with the Dementia Seen and Heard Campaign Commit to a set of actions that your organisation will take to support people affected by dementia from seldom heard groups Share work you’re involved with relating to dementia and seldom heard groups Share the campaign with your networks to raise awareness of the challenges faced by seldom heard […]

© National Dementia Action Alliance 2019. All rights reserved

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