In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

      • Lesbian, Gay, Bisexual and Transgender + (LGBT)
      • Prison population
      • People with learning disabilities
To read further details on each of these themes click below:

Why Seldom-Heard Groups?

People from seldom heard groups can sometimes face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness or cultural understanding across health and social care settings. This problem may have become more acute as public service budgets have been cut.

Through our diverse membership the NDAA is well placed to try and improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care.

What have we done?

In June 2017 the NDAA hosted a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups. The roundtables covered dementia and learning disabilities, dementia within prison settings and within the LGBT+ community.

Following these roundtables, a set of recommendations and actions were developed along with a pledge that asks everyone to sign to demonstrate their commitment to this cause. The campaign was then launched in September 2017 at the NDAA Quarterly Meeting held at the Royal College of Nursing, London.

You can view and download full list of From Seldom Heard to Seen & Heard publications, which includes:

  • Briefing papers
  • Roundtable discussions
  • Recommendations
  • Launch Event papers

Read more


Report: From Seldom Heard to Seen and Heard

After surveying members to find out what they wanted the NDAA to campaign on, the unanimous decision was post-diagnostic support for people from seldom heard groups. In autumn 2017 we launched From Seldom Heard to Seen and Heard, a campaign bringing members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. […]

Dementia and LGBT+ people

In 2018 we got in touch with Ruth Hunt, who at the time was Chief Executive of charity Stonewall, the largest LGBT equality body in Europe. She kindly wrote an article for the NDAA on dementia and LGBT people, as part of our campaign From Seldom Heard to Seen and Heard. In the UK today, there are 850,000 people living […]

Beth Britton Blog for Promedica24

Showing the value of the National Dementia Action Alliance network, two members have teamed up after working on the NDAA Communications Group together. Beth Britton has written a series of blogs for Promedica24. In her latest blog, Beth Britton writes about the value of ethnic diversity in our society and how common bonds can be found and strengthened. In it [...]

Dr Jane Youell looks at the needs of the LGBTIQ+ community in Australia and America

Dr Jane Youell, a Chartered Psychologist, who has been involved in the NDAA’s campaign From Seldom Heard to Seen and Heard, travelled to Australia and the USA to explore how care homes accommodate the diverse sexual identities of people with dementia. The aim of this Churchill Fellowship was to better understand how aged care services could include and respond to […]

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