We are the only national alliance for dementia care and research organisations across England to connect, share best practice and take action on dementia.
Members include leading charities, social care providers, Government bodies, pharmaceuticals, royal colleges, and wellbeing organisations. Everything we do is in partnership and informed by people living with dementia, and their carers. Unfortunately, as of 2021 we are now disestablished – please go to our news page to read more.
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Our members:
“Since joining the NDAA as an affiliate and then as a steering group member I’ve witnessed the devotion and insight of professionals totally committed and united in advancing the cause of dementia at all levels.”
Keith Oliver, Living with young onset dementia, Alzheimer’s Society Ambassador, Kent & Medway PT NHS Dementia Service User Envoy and member of 3 Nations Dementia Working Group
Campaigns
We campaign on major issues within health and social care. To find out more details click the button below.
These statements were developed by people with dementia and their carers.
The person with dementia is at the centre of these statements. They represent everyone living with any type of dementia regardless of age, stage or severity.
The “we” used in these statements encompasses people with dementia, their carers, their families, and everyone else affected by dementia.
These rights are enshrined in the Equality Act, Mental Capacity legislation, Health and care legislation and International Human Rights law.
In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups
In October 2012 the National Dementia Action Alliance launched the Right Care: a call to action to create dementia-friendly hospitals. All acute trusts in England were asked to make a public commitment to becoming dementia-friendly.
The Charter is the second phase of the Right Care initiative. This has been renamed Dementia-Friendly Hospitals and it focuses on our Dementia-Friendly Hospital Charter. It provides high-level principles of what a dementia-friendly hospital should look like and recommended actions that hospitals can take to fulfil them. In the Dementia 2020 Challenge, one of the key aspirations is to create dementia-friendly hospitals.
Dementia Words Matter is A ‘Call to Action’ from people living with dementia. It is led jointly by DEEP & the Dementia Action Alliance
“Dementia Words Matter” is a DEEP Guide, written by people with dementia, that sets out the words and descriptions of dementia that we would prefer are avoided. We recognise that some quite dramatic words and descriptions can be justifiable when used to create a good story and a sense of urgency. On these occasions we hope that evocative language is used thoughtfully and with consideration.
However, it is the words that we describe as ‘curl up and die words’ that particularly form the basis of this Call to Action. This includes words such as ‘demented’, ‘sufferer’, ‘senile’ and ‘living death’. These are words that make us physically flinch when we hear them, that create stereotypes, and that are negatively attached to the person rather than the condition.
“Words are very powerful – they can build you up or put you down. When you are speaking about dementia remember this.” Agnes Houston, person with dementia
Resources
Our resource section contains a library of useful information that can be accessed by members.
TESTIMONIALS
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“The NDAA enables transformational change across health and social care that members couldn’t achieve alone. Each member takes action. Putting the experience of people affected by dementia to the fore, we reach out to the marginalised and ignored and unite hospitals and care providers in our national programmes.”
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“Being a member of the national NDAA is important to me in staying connected with other organisations and key people all striving to improve dementia care. I believe the opportunity to share experiences, ideas and innovations is crucial in developing a cohesive and collective voice for the benefit of families affected by dementia.”
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“The work of the NDAA is very important to me in my role as National Clinical Director for Dementia. Raising the profile of dementia and reaching out to individuals, organisations and communities is so important in improving the lived experience of people with dementia, their families and carers.”
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The NDAA brings together a wide range of organisations and individuals with a wealth of expertise working together, Alliance members have significantly more capacity and influence to deliver positive change than the Department of Health and Social Care or any other organisation working in isolation.
