Example One From seldom heard to
seen & heard

In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

      • Lesbian, Gay, Bisexual and Transgender + (LGBT)
      • Prison population
      • People with learning disabilities
To read further details on each of these themes click below:

The final report was published in February 2020. Read what we achieved in the 3 years.

Read the report


Why Seldom-Heard Groups?

People from seldom heard groups can sometimes face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness or cultural understanding across health and social care settings. This problem may have become more acute as public service budgets have been cut.

Through our diverse membership the NDAA is well placed to try and improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care.

What have we done?

In June 2017 the NDAA hosted a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups. The roundtables covered dementia and learning disabilities, dementia within prison settings and within the LGBT+ community.

Following these roundtables, a set of recommendations and actions were developed along with a pledge that asks everyone to sign to demonstrate their commitment to this cause. The campaign was then launched in September 2017 at the NDAA Quarterly Meeting held at the Royal College of Nursing, London.

You can view and download full list of From Seldom Heard to Seen & Heard publications, which includes:

  • Briefing papers
  • Roundtable discussions
  • Recommendations
  • Launch Event papers

Read more


Bring Dementia Out update

The Bring Dementia Out programme is led by LGBT Foundation, in partnership with National Dementia Action Alliance, National LGB&T Partnership and Switchboard (Brighton & Hove). The programme is supported by The Guinness Partnership, and builds on the work of the same name produced as an innovation project by Alzheimer’s Society. Bring Dementia Out seeks to identify the additional challenges faced […]

Better support for BAME people living with dementia during the Covid-19 pandemic

The Race Equality Foundation has been awarded a grant by the Department of Health and Social Care to lead a programme with Black South West Network, Caribbean African Health Network and Friends Families and Travellers, to work with 21 voluntary and community organisations to support black, Asian, and minority ethnic people living with dementia and their carers, in England during […]

Alzheimer’s Society looking for LGBT people to join reader panels

Alzheimer’s Society are looking for LGBT+ people to join their publications reader panels. Help them improve services & support by emailing: publications@alzheimers.org.uk for more info. Read about the Bring Dementia Out programme by LGBT Foundation https://lgbt.foundation/bringdementiaout   Read National Dementia Action Alliance’s From Seldom Heard to Seen and Heard report https://nationaldementiaaction.org.uk/campaigns/report-from-seldom-heard-to-seen-and-heard/   See what NDAA have been doing to support […]

NDAA article in Journal of Dementia Care

The Journal of Dementia Care have published an article by NDAA’s Sarah Tilsed in their most recent edition of their informative magazine. The article is about our campaign From Seldom Heard to Seen and Heard, which looked at the specific challenges faced by people affected by dementia in marginalised or “seldom heard” groups. In order to gather information for the […]

© National Dementia Action Alliance 2020. All rights reserved

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