Example One From seldom heard to
seen & heard

In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include:

      • Lesbian, Gay, Bisexual and Transgender + (LGBT)
      • Prison population
      • People with learning disabilities
To read further details on each of these themes click below:

The final report was published in February 2020. Read what we achieved in the 3 years.

Read the report


Why Seldom-Heard Groups?

People from seldom heard groups can sometimes face barriers to accessing good health and social care, which at time fails to meet their needs. Challenges can include a lack of awareness or cultural understanding across health and social care settings. This problem may have become more acute as public service budgets have been cut.

Through our diverse membership the NDAA is well placed to try and improve this situation by harnessing the resources and ideas of our members and of other organisations operating across health and social care.

What have we done?

In June 2017 the NDAA hosted a series of evidence gathering roundtables with leading stakeholders involved in delivering care and support of seldom heard groups. The roundtables covered dementia and learning disabilities, dementia within prison settings and within the LGBT+ community.

Following these roundtables, a set of recommendations and actions were developed along with a pledge that asks everyone to sign to demonstrate their commitment to this cause. The campaign was then launched in September 2017 at the NDAA Quarterly Meeting held at the Royal College of Nursing, London.

You can view and download full list of From Seldom Heard to Seen & Heard publications, which includes:

  • Briefing papers
  • Roundtable discussions
  • Recommendations
  • Launch Event papers

Read more


NDAA decade of achievements

Although the NDAA is formally disestablished (but working on the Dementia-Friendly Hospital Charter Wales and England until October 2021), there is much to be celebrated in what the alliance, members, hospital trusts and campaign partners have achieved since it was founded in 2010. There have been detailed annual reports, international webinars, busy annual conferences, co-production with people affected by dementia […]

NDAA to be disestablished

As you may know, we took the decision to pare back NDAA activity in March/April 2020, in light of the impact that the pandemic was having on both the NDAA and members. Over the last 9 months we have not asked for any member contributions, and the only activity that has been continued is the development of the Dementia Friendly […]

Alzheimer’s Society Wales Conference 2021

17th – 18th March 2021 Alzheimer’s Society is pleased to announce that they have rescheduled their 2020 conference to 17-18 March 2021, which will be an online event. Unfortunately, they have been unable to plan a face to face conference due to the pandemic, but wanted to still bring the conference they planned to you in some form. They have […]

Supporting people from BAME communities affected by dementia under the Covid pandemic

The Race Equality Foundation’s programme supporting people from Black, Asian and minority ethnic communities affected by dementia under the Covid pandemic has come to an end and a newsletter summarising the programme is available here. Race Equality Foundation were awarded a grant by the Department of Health and Social Care to lead a programme with Black South West Network, Caribbean […]

© National Dementia Action Alliance 2021. All rights reserved

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