CAMPAIGNS In partnership with our members, we campaign on major issues within health and social care, to ensure people affected by dementia and those that care for them have the best possible experience accessing services. Image provided by Hallmark Care Homes
featuring an intergenerational partnership
programme called ‘Songs and Smiles’


Each campaign the NDAA undertakes seeks to bring about large scale change across the health and social care sector and better outcomes for people living with dementia and carers. See further details of these campaigns below.

The world has changed so much in such a short space of time. As members of the NDAA, let us all come together during this pandemic and help people affected by dementia.

We want to ensure that people affected by dementia and members can remain socially connected.

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These statements were developed by people with dementia and their carers.

Click here to view the full report.

The person with dementia is at the centre of these statements.  They represent everyone living with any type of dementia regardless of age, stage or severity.

The “we” used in these statements encompasses people with dementia, their carers, their families, and everyone else affected by dementia.

These rights are enshrined in the Equality Act, Mental Capacity legislation, Health and care legislation and International Human Rights law.

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In autumn 2017, the National Dementia Action Alliance launched ‘From Seldom Heard to Seen & Heard’, a campaign bringing NDAA members together for improved outcomes for people living with dementia and their carers who come from seldom heard groups. These communities include LGBT+ communities, the prison population and people with learning disabilities.

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In October 2012 the National Dementia Action Alliance launched the Right Care: a call to action to create dementia-friendly hospitals. All acute trusts in England were asked to make a public commitment to becoming dementia-friendly.

The Charter is the second phase of the Right Care initiative. This has been renamed Dementia-Friendly Hospitals and it focuses on our Dementia-Friendly Hospital Charter. It provides high-level principles of what a dementia-friendly hospital should look like and recommended actions that hospitals can take to fulfil them. In the Dementia 2020 Challenge, one of the key aspirations is to create dementia-friendly hospitals.

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Dementia Outreach volunteer (right) at Royal Wolverhampton Hospital with a family carer

Dementia Words Matter is A ‘Call to Action’ from people living with dementia. It is led jointly by DEEP & the National Dementia Action Alliance

“Dementia Words Matter” is a DEEP Guide, written by people with dementia, that sets out the words and descriptions of dementia that we would prefer are avoided. We recognise that some quite dramatic words and descriptions can be justifiable when used to create a good story and a sense of urgency. On these occasions, we hope that the evocative language is used thoughtfully and with consideration.

However, it is the words that we describe as ‘curl up and die words’ that particularly form the basis of this Call to Action. This includes words such as ‘demented’, ‘sufferer’, ‘senile’ and ‘living death’. These are words that make us physically flinch when we hear them, that create stereotypes, and that are negatively attached to the person rather than the condition.

“Words are very powerful – they can build you up or put you down. When you are speaking about dementia remember this.” Agnes Houston, person with dementia

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MacIntyre’s Easy Read Dementia Statements

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Hidden in Plain Sight – Dementia and Learning Disabilities Report

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Here are some projects the NDAA has worked on or supported.

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© National Dementia Action Alliance 2021. All rights reserved

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